It’s going to be hard.
But this book can help.
Each year, more than 500,000 people are diagnosed with dementia in the United States.
As stunning as that figure is, countless family members and caregivers are also affected by each diagnosis. Families are faced with the need to make vital end-of-life decisions about medical treatment, legal and financial matters, and living situations for those who no longer can; no one is prepared for this process. And many caregivers grapple with sadness, confusion, guilt, anger, and physical and mental exhaustion as dementia enters its final stage.
In Making Tough Decisions about End-of-Life Care in Dementia, Dr. Anne Kenny, a skilled palliative care physician, describes how to navigate the difficult journey of late-stage dementia with sensitivity, compassion, and common sense.
Combining her personal experience caring for a mother with dementia with her medical expertise in both dementia and end-of-life care, Dr. Kenny helps the reader prepare for a family member’s death while managing their own emotional health.
Reviews & Academic Praise
What they’re saying
The text is enriched with stories of Kenny’s own family (her mother died of dementia) and from numerous other patients and families, which brings what she has to say to life. She does not pull any punches about dying and death and all the problems they bring, but she does so in a kind and caring way… I think this book will be very helpful to many people… If your work in palliative care involves significant numbers of patients with dementia, this book will give you plenty to reflect on.
Dr. Roger WoodruffInternational Association for Hospice & Palliatative Care
I, like so many others, have been there: In a position where you have to make decisions to help a loved one end their life with dignity and in the way they want for themselves. It’s not easy, but I can honestly say that knowing I did my part brought me a great deal of peace. Dr. Anne Kenny has also been in that position, and that is what makes her book MAKING TOUGH DECISIONS ABOUT END-OF-LIFE CARE IN DEMENTIA that much more powerful.
The book allows caregivers to know 1) that they are not alone in what they are going through or dealing with and 2) that they can plan with their loved one to make the process less burdensome.
There are so many things that go into being a caregiver, especially when you factor in making sure that their affairs are in order and communication is happening between all parties. Dr. Kenny shares how this definitely helps take the stress out of the situation, and even though you hate to see your loved one or the individual you are caring for go, you can be assured that there are less stresses when you are grieving.
One of the most important books I have read this year. This is sure to be a valuable resource for many family members and caregivers.
Cyrus WebbTop 500 Amazon book reviewer
A safe and reliable guide for family members caring for loved ones with end-stage dementia.
Laura Wayman, Dementia WhisperersAuthor of A Loving Approach to Dementia Care: Making Meaningful Connections with the Person Who Has Alzheimer’s Disease or Other Dementia or Memory Loss
I loved everything about this book! Each chapter started with a personal story from the author about her family’s journey with Alzheimer’s that was compassionate, poignant, and even hopeful . Throughout each chapter, Dr. Kenny mixed professional case studies, theory about the why and how of changes happening to her patients and their families and ended each chapter with Points to Remember, Action Steps and Additional Resources. Topics covered include emotional support for the caregiver both during and after death, decision making for someone else medically, legally, financially and specific information about stages of dementia and the process of active dying. Dr. Kenny’s use of her own story and those of her patients reveal her to be a physician who weaves medical knowledge, the range of human emotion and spirituality into a almost “how-to” manual that gives comfort to both the living and the dying. I’ve already recommended it to friends and clients who are experiencing this process in their own lives.
Denise D. SanadyLCSW
This book offers the professional and personal perspective of an excellent physician―an opportunity to ask the expert, ‘What would you do if it were your mother?
Harvey Jay Cohen, MD, Duke UniversityCoauthor of Practical Geriatric Oncology
Dr. Kenny’s book is a must read, especially if you are caring for someone with dementia. Dr. Kenny’s advice is so practical and easy to start using right away. I found the points to remember, action plans and additional resources to be invaluable. This is a great book to keep in your library and refer back to from time to time.
This book fills a critical gap for families in the throes of coping with the care of loved ones in the final stages of dementia.